I normally try to keep this blog about copywriting. Well, pretty much… Maybe copywriting, writing, creativity, freelancing, that kind of thing. Anyway, the point is, I don’t normally talk about lupus.
But October is Lupus Awareness Month so it feels like the right time to veer off my normal topics and cover what has been a huge part of my life. You can follow the campaign online using the hashtag #thisislupus.
Before you read this, especially if you work with me, it’s important for you to know that I’m doing really well.
I’m not often in pain these days and, although I get tired, you wouldn’t really know there’s anything wrong unless I told you. So please don’t wrap me in cotton wool just because I’m being brave and talking about this.
It took ten years (and many, many doctors) before I was diagnosed with systemic lupus erythematosus (SLE or ‘lupus’) in my late 20s.
I was in pain every single day, severe pain some days, and felt constantly exhausted. And that’s before you throw in some pretty awful side effects from the medication once they finally figured out what was wrong and started treating it. But I’m not going to go into the grisly details of my symptoms – everyone experiences lupus differently, and you can find out more about it here.
What I want to talk about instead, and I think this will be common to people with all sorts of medical conditions, is the impact being ill had on me.
On my day to day life.
On my wellbeing.
On my relationships with friends and colleagues.
And on the way I look at the future.
Through October I’ll be covering all this and maybe more. Join me, if you will: